This journey is definitely not a straight path. It is now Monday afternoon and this weekend was an up and down roller coaster ride and I didn't have much time to update this blog so I'm playing a little catch up (and therefore this is kind of long).
Let me back up to Friday night. Julia was feeling pretty good and therefore Laurence and Mary Ann Stassen decided to join us for Games Night at the hospital. Julia had put on some of her own clothing and walked down to the day room. It was nice to distraction and it got her out of her room.

On Saturday morning, since her temperature was still normal, she got the okay to be discharged from the hospital. We made a short visit back to the ICU to thank the nurses there. Next stop was the pharmacy to get all the drugs she would need at home. A little after lunch we made it home.

The home care nurse arrived at around 2pm to administer her main antibiotic (which took about 45 minutes) and then hooked her up to a portable pump which would administer a second antibiotic at various times during the day.
In our discussions with that nurse reviewing everything that happened, we talked about the discharge orders that Julia should continue to monitor her temperature and was supposed to return to the ER if her temp got above 38.5 C (101 F) So everyone on both sides of the border gets a perspective, 37C and 98.6F is normal.
When we tested her she was 38.5. We had tested our home thermometer against the hospitals earlier that day and it was a little bit higher, however I tested it myself and came in at exactly 37.0. The home nurse suggested that we wait 1/2 hour to an hour and retake it to see if it was going up or down. Julia was also getting the chills (something she had experience through out last week) but felt warm to the touch. After getting the other antibiotic in and taking her one oral antibiotic, we took her temp again and it was now 39.1. It was now a little after 4pm, 5 hours after her discharge, and after saying goodbye to Marika, we head back to the hospital.
We got to the ER desk at 4:30, and by 5 she was in a ER observation bed hooked up to all the monitors she was on in the ICU. She spent the next 5 hours in observation and it took about that long for them to track down her files (they in the middle of being filed) and tracking down a doctor (her doctor was off this weekend). She was readmitted at around 10pm and basically put back on the exact same plan as before since the on call doc didn't want to change anything. It was a frustrating experience to go through. The thing that is confusing in all this is that she was allowed to be discharged because she didn't have a temp for 48 hours, but the nurses were giving her 400mg of Ibuprofen every 4 hours which in effect reduces fevers. It seems a little silly now to have a discharge condition be based upon something you are controlling with a drug and it isn't surprising that when you stop talking it, the fever returns.
Sunday I brought in my laptop and Marika, and together we watched the church service from last week. It lifted our spirits and we felt more at peace that Julia was back in the hospital.

As we got the frustrations and disappointments of Saturday behind we were glad that she is in the right place and are praying that they will be able to determine what the cause of the fever is. It's not what we wanted to happen, but is a proper step determining what is going on.
One more piece of the puzzle, when she was in ER, they gave her more Ibuprofen and her fever came down. However, she didn't have a fever all night (Sat) or at all the next morning (Sun), but started to get one (and the chills) at around 1-2pm in the afternoon, similar to the day before. We don't know if there is some sort of cyclic pattern here. Also, an internal medicine doctor came in and asked a bunch of questions and scheduled an interdisciplinary meeting to get a few heads together on this one. That's comforting and scary at the same time. She continues to get more blood worked done, and she had an chest X-ray done. Also, they took some swabs to test for antibiotic resistant bacteria which I guess is standard procedure if some one was discharged after and infection, and returns to the hospital within one year. Julia didn't quite make it to that one year mark.
My mom and Julia's mom did a swap again yesterday (and her dad was her over night dropping her mom off). Julia and I decided to take advantage of our parents and had a date night last night...well as close as you can get in the hospital. I rented a movie, hooked up the speakers to the laptop, and we watched a movie. It was nice to be together even though we were interrupted so Julia could go get her X-ray done.
Thanks for the continued prayers and support. Though at times we are discouraged, your continued prayers are an encouragement to us.
Matt, Julia, & Marika